Archive | Family RSS feed for this archive

Catching Up!

August 9, 2015

2 Comments

It’s been two years since I’ve visited here and posted. Two years spent in reflection and reconciliation. And lookee here! I’ve come out on the other side relatively unscathed. Mike is doing well physically. Unfortunately his motor planning skills have been dramatically affected and he is in a wheel chair most of the time. To […]

Continue reading...

Another One Leaves The Nest…

January 4, 2012

0 Comments

Yesterday was momentous.  We drove to Harrisburg to say goodbye to our baby baby.  Our first grandson is old enough to have gone off and joined the Marine Corps and the day he has been planning for a year and a half finally arrived yesterday.  We piled our daughter and his brother into the car […]

Continue reading...

Saturday’s Child Must Work For A Living

October 15, 2011

0 Comments

But a child that’s born on the Sabbath day is fair and wise and good and gay.  October 15, 1950 was a Sunday…and it’s the day Mike was born.  And oddly enough, all these characteristics of Sunday’s child are those that typify my husband.   Today’s his 61st Birthday.  The birthday that almost wasn’t.  I still […]

Continue reading...

Nueropsychology for (k)Nuckleheads

October 12, 2011

1 Comment

Where I would be the head knucklehead.  I keep thinking there must be some science to this whole brain injury recovery that is somehow escaping me.  While I know that every situation, every brain, every injury, every patient, and ultimately,  therefore, every recovery, is different, the lack of information I have gotten on what the extent […]

Continue reading...

Project Healing Waters

October 9, 2011

1 Comment

Project Healing Waters is a project whose mission is :  “to assist in the physical and emotional rehabilitation of disabled active duty military personnel and veterans through fly fishing and fly tying education and outings.”   Locally, the LVMAC (Lehigh Valley Military Affairs Council) and the Hokendauqua Chapter of Trout Unlimited joined forces to present a day of […]

Continue reading...

October Skies

October 7, 2011

0 Comments

Did you ever notice that the early morning sky can have the tiniest bit of pink shading?  It’s October…and October has the bluest skies ever…so in the early morning light, the softness of the blue approaches the sky blue in my box of Crayolas…but not as full or rich yet because the sun is just […]

Continue reading...

Happiness is healing…

October 6, 2011

0 Comments

On the way to the doc’s office today (yes, there is mild, very mild, COPD.  No meds for it at this time.  Just watch it.  Since it didn’t appear before the cardiac arrest and all the pneumonia/vent/mrsa/respiratory failures, it is probably due to that. )  I asked Mike my usual question. “Honey, have I told […]

Continue reading...

Turning Corners

October 6, 2011

0 Comments

I have to wonder if we’ve turned another corner in recovery.  Memory is still not really better.  However, yesterday I noticed pieces of old personality returned…or were returning.  Not the best pieces either!  Enroute to speech therapy and his visit with the neuropsychologist, Mike argued with me endlessly about how it was most certainly not Wednesday.  And […]

Continue reading...

Family, Comfort, Celebrations…Together

September 25, 2011

2 Comments

Fall.  It’s time for nesting…settling in, getting ready for winter and snuggling.  Today seems to be the day to launch the Autumnal nesting at my house. Mike went to the church 90th anniversary luncheon with Mel.  I seized the opportunity to stay at home and get some stuff done.  First I watched two tivo’d episodes […]

Continue reading...

Memories

September 25, 2011

0 Comments

These have been on my mind a lot lately.  Both Mike’s and my memories.  And just memory itself. There’s the memories of Mike’s arrest.  I think those are some kind of post traumatic thing…they make me cry a lot and grieve.  But in reality there is not a lot of time for that in my […]

Continue reading...

Progress!

September 21, 2011

0 Comments

It’s a day.  Neither a good day nor a bad day.  A busy day…but still just a day.  We’ve been up for hours because today is the day the super duper high efficiency heat pump/air con is being installed.  What a project it is too.  Mercifully the temperatures are cool today.  This afternoon brings a […]

Continue reading...

Mike Day 81 Moving Forward: Out Of The Fog

August 15, 2011

2 Comments

It’s  been a very long time since I last posted.  I seemed to have lost my voice.  My mind.   My spirit.  It was everything I could do to pick my head up off the pillow in the morning…especially since it had probably been picked up off the pillow no less than 8 times during the […]

Continue reading...

Mike Day 45 Moving Forward: Recreational Therapy

July 11, 2011

1 Comment

All of these therapies Mike receives are great.  As far as they go.  To him, I am sure, they feel like work.  I also find them to be a bit tedious.  I’ve been looking into adjunct therapies…some speech therapy workbooks, different from the ones his therapist uses. Hyperbaric Oxygenation Therapy which I am certain I can’t afford […]

Continue reading...

July 3 Mike Moving Forward: “One Of The Best Nights”

July 3, 2011

2 Comments

Really, Mike is so easy to please…he always was, but now is even easier.  Such simple things have always pleased him. During the day Mike slept blissfully till about noon.  After the wandering of the night before and in the absence of scheduled appointments, this was what I expected and what usually gets him back […]

Continue reading...

Mike Day 36 Moving Forward: Midsummer Night’s Dream

July 2, 2011

1 Comment

It’s been one of those periods of those days.  Days…and mostly nights…where I can’t quite explain what the heck I’m seeing and experiencing.  They’re like bad dreams.  Unexplainable.  Surreal.   Not that there has been anything big going on, or bad, it’s just a strange period.  Mike’s been making progress cognitively.  Some days he has such […]

Continue reading...

Mike Day 27 Moving Forward: Catchup Epistle

June 23, 2011

1 Comment

Well, I haven’t written for several days…and during brain injury recovery there don’t seem to be many static periods.  So there’s lots to ruminate on.  This will be long.  I should probably break it into multiple posts, but who has time.  Grab a cuppa joe if you’re reading and inclined to see it through to the end.  […]

Continue reading...

Father’s Day

June 19, 2011

1 Comment

My daughter Lara said it best about Father’s day this year.  On Facebook she wrote: ” My family and I actually received the BEST Father’s Day gift ever, the chance to still have my father in all of our lives! A special Happy Father’s Day goes out to the GREATEST father in the world…MINE! Love you […]

Continue reading...

Mike Day 22 Moving Forward: Out Of The Mouth Of…Mike

June 18, 2011

0 Comments

You never know what might come out of Mike’s mouth…you expect confusion, made up words, incomplete sentences, all courtesy his acquired brain injury.  When you get snippets of his old personality, his old sense of humor, it’s truly a treat that makes me laugh and laugh.  And laughing is good.  So very good. The other […]

Continue reading...

Mike Day 20 Moving Forward: EUREKA!

June 16, 2011

0 Comments

Mike woke up, hopped out of bed, headed to the bathroom.  He came out looking for what I inferred to be the towel and  wash cloth as he mimed washing he face.  He informed me he was planning to wash and brush his teeth.  I gave it to him…he washed his face dry.  There was no convincing […]

Continue reading...

Mike Day 20 Moving Forward: Medical Updates

June 16, 2011

0 Comments

Yesterday I met with the various therapies working with Mike.  PT tells me he is pretty high functioning actually, in the physical department.  And they tested his balance and he passed the balance test with flying colors…which surprised them because in the gym he is oblivious to what is around him which makes it throw off […]

Continue reading...

Mike Day 19 Moving Forward: Are You Kidding Me?

June 15, 2011

2 Comments

Who would have known that the guy I’m married to for 31 years now, who cannot recall our marriage, who often doesn’t recall momentous events in our joint lives or his own life, who cannot remember his sister who died 30 years ago, who cannot remember five minutes after lunch that he had lunch and had […]

Continue reading...

Mike Day 18 Forward: Our Wedding Anniversary…how sweet it is

June 14, 2011

0 Comments

First, Happy Anniversary to us.  It’s 31 years today since we were married.  I’m interested to see if Mike retained that information till this morning.  Lately, it seems as if sometimes his short term memory is improving with enough repetition of the same data…and then only for short periods.  Truthfully, the memory thing is a […]

Continue reading...

Mike Day 17 Forward: This, That n The Next Thing

June 13, 2011

1 Comment

It’s Monday…our day off from Therapy, doctor’s appts, wound care center appts and the like.  Mike DID have to have blood drawn, and, since our priest is leaving for two weeks in Italy and has been wanting to give Mike the sacraments for a bit now, Mel took him to church for communion.  Right now […]

Continue reading...

Mike Day 15 Forward: Rainy Day Impressions

June 11, 2011

0 Comments

It’s early.  I’ve been up for an hour, since 5, awakened by the pups who were sure it was time to go out.  Somehow they hadn’t realized it was raining buckets…and they don’t like the rain.  Awake for nothing.  SIGH.  I lay here in the semi-dark hoping the light from the pc and the tapping […]

Continue reading...

Mike Day 10 of The Journey Forward

June 6, 2011

2 Comments

So here we are, ten days from Mike’s discharge.  It’s been a ride, but we are finally settling into some sort of normalcy…or something akin to a routine, which is very comforting to me these days.  Oddly enough, I used to view spontaneity as the greatest gift and found routines to be tedious.  I think […]

Continue reading...

Mike Day 97: D-Day

May 26, 2011

0 Comments

At last it’s here…after 96 long days of hospitalization I get to bring Mike home!  I grocery shopped last night and brought home all ilk of fruit, juices, veggies and good for you stuff to eat.  I have the prescriptions in hand to drop off on the way to the hospital.  Nursing gave me my discharge […]

Continue reading...

Mike Day 96: D-Day Minus 1

May 25, 2011

0 Comments

Tomorrow is the big day!  I can hardly wait.  It’s been a huge week getting ready, and I still have grocery shopping to do…but we are almost home “free”.  Free is an odd way to put it.  We are definitely not “free”.  The cost of a serious medical illness such as Mike’s is pretty staggering.  […]

Continue reading...

Mike: Quips and Giggles

May 23, 2011

0 Comments

Mike has always been a funny guy and had a great sense of humor.  One of the greatest gifts I’ve ever gotten from Mike was the ability to laugh and to have a sense of humor.  His sense of humor has not left him…and when it shows itself I often wonder how much CNS damage […]

Continue reading...

Mike Day 92: Getting Ready For Homecoming

May 22, 2011

0 Comments

Yesterday we began readying the house for Mike’s return home.  The kids, Deb, and I got together very early and descended on the bedroom.  With only 5 days to go, the countdown has begun and we need to get cracking! To say Mike has “stuff” squirreled everywhere would be an understatement.  A collector of all […]

Continue reading...

Day 91 Mike: ShortTimers

May 20, 2011

0 Comments

It’s looking good for the 26th and D-Day (in this case, Discharge Day).  I’m a little scared the bedsore might throw a monkey wrench in…it suddenly started to have yukky drainage again.  I’ve insisted the wound care nurse evaluate it again today and I’m hoping that they can turn whatever has flared up around very quickly.  […]

Continue reading...

Mike Day 89: (Almost) Out Of Exile

May 18, 2011

1 Comment

At last the exile that resulted from our very indulgent and unhealthy eating habits…which is all Mike’s heart attack is attributable to…is almost over.   As discharge became a sooner rather than later reality bearing down on us, I began to feel kind of unsettled about some open items relative to Mike’s daily existence that I […]

Continue reading...

Day 84: Such A Great Day After All!

May 13, 2011

1 Comment

This morning, first thing, we visited the office of Pulmonary Associates…the critical care docs who cared for Mike for 2 months and brought him through so much illness it can’t be believed.  Dr. Jeff Marsh saw him…I had rather hoped it would be he and expressed same to nurse practitioner at Good Shepherd before she made the […]

Continue reading...

Mike Day 84: He’s Fine. My Last Nerve Is Shot.

May 13, 2011

0 Comments

It looks like there is not much more time left with Mike spent in exile in one form of hospital or another.  The last week of May is right around the corner…worst case scenario, first week of June…and Mike should be coming home.  This, of course, depends on whether or not the medical people are giving […]

Continue reading...

Mike Day 82: Marching (In Place)

May 11, 2011

0 Comments

Yesterday I arrived at the rehab expecting to see (a) the feeding tube gone (b) a wound vac on Mike’s bedsore to heal it in (optimally) 2 months and (c) an appointment made at an ENT to evaluate the condition of Mike’s vocal cords so we would know if we could pull the trach or not.  You see, […]

Continue reading...

Mike Day 81: Success

May 10, 2011

0 Comments

Yesterday proved to be a success on many fronts. I arrived at the hospital and the first stop was in the office of the care manager.. she is appropriately titled. And wonderful. She assured me that my schedule ideas could be readily implemented. On the subject of trach removal she wanted respiratory involved. Off we […]

Continue reading...

Mike Day 80: Planning and Waiting

May 9, 2011

0 Comments

Last Tuesday or Wednesday Mike’s care manager told me they are still looking at 3-4 weeks of inpatient therapy for him.  Some quick mental math tells me that this illness will have had him hospitalized for somewhere around 100 days.  The three weeks seems so close…and still so far away.  The reality of bringing Mike […]

Continue reading...

Mike Day 74: Blessings Abound

May 3, 2011

0 Comments

So the oximetry sleep study for last night did not happen.  Mike was in no way tired, and in no way sleeping.  Well 5-6 am but that is all.  He was a little twitchy/rammy too.  I think overstimulated and not terribly tired because he powernapped in the afternoon, all thought of sleep went out the window.  So […]

Continue reading...

Mike Day 73: Catching Up

May 2, 2011

0 Comments

Phew!  It’s been a bit since I’ve posted.  This isn’t because Mike is not doing well…on the contrary, he is improving and improving quickly!  I’ve been spending a lot of time at the rehab hospital and they don’t have a nearby hotspot…so no web access for my laptop and when I get home I am beat. […]

Continue reading...

Mike Day 67: A Simply Lovely Day

April 26, 2011

1 Comment

Wow.  What huge progress Mike has made in a few short days at neuro rehab.  He walked 85 feet with the walker. It’s a bit clunky and he tires for sure…but I hearken back to February when we could barely get two eye blinks from him.  He walked with the assist of me and the nurse, no walker, […]

Continue reading...

Mike Day 66: Rainbows

April 25, 2011

2 Comments

I’m reminded this morning, that after 40 days and nights of rain Noah saw a rainbow…a visible commitment from God and a reminder that He carries us safely through storms. I’m also reminded that last night as I began to despair, my daughter texted a photo…a distinct and brilliant rainbow in the East, clearly visible […]

Continue reading...

Mike Day 66: What Is To Become Of Us?

April 25, 2011

3 Comments

Yesterday, again, was a day of many mixed blessings.  Mikey visited Mike right after church.  When I arrived at the rehab about 10 he was already there and Mike was in OT.  Unfortunately, when I headed back to Mike’s room,  I was greeted with the news that he was in therapy, his son was there, and that […]

Continue reading...

Mike Day 65: Happy Easter

April 24, 2011

0 Comments

Good morning…and Happy Easter.  What a beautiful morning to commemorate the Resurrection!  This morning it is truly evident that Spring has sprung in Pennsylvania.  Day one at Rehab was really quite surprising to me.  I can’t say whether or not it is the increased movement and being out of bed more or just that Mike […]

Continue reading...

Mike Day 64: A Jubilant Day 63 Report

April 23, 2011

2 Comments

First things first.  Mom…I visited the doc for my 30,000 mile checkup (though it feels more like 200,000 miles) and all seems well.  Ticker sounds good, BP not bad all things considered, EKG looks swell…waiting for results of blood work but don’t expect anything untoward to show up.  I’ll live to see another day I reckon.  (I am […]

Continue reading...

Mike Day 62: A Fresh Start

April 21, 2011

0 Comments

After a good bit of crying over the outcome of the Highmark appeal yesterday, I had a revelation.  I realized my thinking on the whole topic of this brain injury pre-authorization was directionally incorrect. I was pretty much delusional in hoping Highmark would reverse their decision on these appeals in any reasonable fashion.   I was being naive […]

Continue reading...

Mike: Day 61 Appeal Results

April 20, 2011

0 Comments

About an hour ago I received a call from Tammy at Highmark. She wanted to let me know that a hearing had been held yesterday regarding my appeal. Bear in mind this was a hearing I knew nothing of and was afforded no opportunity to participate in. She went on to explain that I would […]

Continue reading...

Mike Day 61 Highs and Lows

April 20, 2011

0 Comments

Yesterday was a day of mixed blessings. As with almost every day I start by thanking God for another day above ground. I figure every one of those is a great day. I thank him for my many blessings, ask him to continue to heal Mike and to keep me healthy so I can take […]

Continue reading...

Day 60: Addendum; Highmark again

April 19, 2011

0 Comments

I wonder if I should be calling them Lowmark rather than Highmark?   Though they were to have had something to me today.  I had nothing.  Nothing.    I believe they are doing their best to deny the request, but doing damage control in the background and until the damage control is done I won’t hear anything.  I DID hear […]

Continue reading...

Highmark Stuff….

April 19, 2011

0 Comments

Looks like brain injury denials aren’t new to Highmark…  http://www.wvrecord.com/news/233958-ohio-doctor-challeges-denial-of-insurance-coverage-to-disabled-husband How ironic!  The Brain Injury Association is one of 13 charities walking in the Highmark Walk for a Healthy Community.  Seems the charities receive the proceeds from the walk.: http://www.biapa.org/site/c.iuLZJbMMKrH/b.6544967/k.886C/Highmark_Walk_for_a_Healthy_Community.htm http://www.walkforahealthycommunity.org/whc2/hbg/index.shtml

Continue reading...

Mike: Day 60; The Highmark saga continues

April 19, 2011

0 Comments

Yesterday was a busy day for me.  It’s exactly 60 days since Mike’s MI and the medical shit storm that has rained down on our house ever since.  It seems, in the 60 days, the demands that this has created have increased rather than lessened and my life, my time is no longer mine or […]

Continue reading...

Mike Day 59

April 18, 2011

1 Comment

Yesterday was pretty hard with Mike on a personal level.  I’ve been promising him for about three weeks he would be going to rehab.  On a daily basis, as his recovery has begun to escalate and he has become aware of his surroundings and his state, he has grown increasingly frustrated with his physical shortcomings.  He […]

Continue reading...